Every year, The Marfan Foundation holds an annual conference that provides people living with Marfan syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Loeys-Dietz Syndrome, FAA, and other related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.
The Foundation offers specialized programs and workshops for people of every age, including children, teens, young adults, and older people. In addition, we offer conference attendees free medical assessments, which we make possible in conjunction with the medical institution that co-hosts the conference and our dedicated medical advisors, who are the leading doctors on Marfan syndrome and related conditions from across the U.S. This is a unique offering that is truly a benefit for those who do not have access to expert medical care near their home or lack healthcare coverage. And, we offer scholarships to conference attendees.
In 2019, the Foundation launched its first VEDS track at the Annual Conference, providing the VEDS Community with a program designed to meet their specific needs. It featured the leading doctors on VEDS and community leaders from across the U.S.
Since the great success of the Vascular Ehlers-Danlos Syndrome tracks at the 2019 conference, The Marfan Foundation formally announced its VEDS division, The VEDS Movement. The Annual Conference will continue to expand its programs and events specifically for our VEDS community. We hope you join us!
2020 ANNUAL CONFERENCE UPDATE: Sadly, we have come to realize that, due to the coronavirus pandemic, it is not in the best interest of our community to hold the Annual Conference this year. Your health and well-being is our top priority and we do not want to put anyone at risk. Please read more about this difficult decision from Micheal Weamer, President and CEO.
OPPORTUNITY FOR DOCTORS: Dr. Reed Pyeritz and Ms. Jane Tumpson Marfan Conference Physician Travel Scholarship available. Learn more and apply here.
Save the Date!
36th Annual Conference
July 8-11, 2021
Missed attending last year’s conference? See recorded presentations from last year’s conference
Also check out our regional symposiums, held throughout the year across the U.S.