The Empowerment Series is a webinar program to help people in the Vascular Ehlers-Danlos Syndrome (VEDS), Marfan, and related conditions community improve their quality of life. The topics covered in this series are selected based on the needs expressed by community members. These include: pain, depression, insurance problems, inability to work, financial instability, chronic bone / joint / eye problems, and a whole host of problems that lie outside the specific medical issues that are associated with VEDS and other related conditions.
Please register in advance for any of the webinars you would like to participate in. A recording of each will be available on our website for those who are unable to participate live.
Please note that any registration button will take you to The Marfan Foundation’s website. The VEDS Movement invites the VEDS community to participate in these webinars because many of the challenges of living with Marfan and VEDS overlap.
More webinars to be announced soon.
Previous Webinars:
Medical Marijuana for Pain
Presented by Dr. Jordan Tishler
Tips for Coping with Depression, Anxiety, and Anger
Melissa Flint, PsyD
Midwestern University
The Role of Genetic Counselors in Your Medical Journey
Taylor Beecroft, MS, CGC
Texas Children’s Hospital
Relationships and Chronic Illness
Presented by Roanne Weisman, MSW, and Barbara Kivowitz
On Grief and Grieving
Presented by Susan Leshen, LCSW and Jan Lynch, MSN, RN of The Marfan Foundation
Managing Pain
Presented by Traci Speed, MD, PhD
How To Work with Your School Nurse
Presented by Kathleen Rose, RN
Empowerment and Finding Your Passion
Presented by Andy Erikson and Katie Lasky
The Other Half Of You: Mental Health For Beginners
Presented by Stephanie Randazzo, PsyD, Doctoral Student at AUSFBA
Let’s Talk About YOU: Self-Care and Empowerment Strategies
Presented by Jan Lynch, MSN, RN, Director of the Foundation’s Help & Resource Center
Social Security Disability
Presented by Kathleen Kane, Esq, and Jon Rodis, President of the Massachusetts Chapter of The Marfan Foundation and a National Disability and Medical Advocate for Rare Disorders
Physical Therapy
Presented by Michael P. Healy, PT, DPT, DOMTP, (Canada), CSN, CPT, TPI, MBA, President and CEO, Healy Physical Therapy & Sports Medicine
If you have any questions about the Vascular Ehlers-Danlos Syndrome Empowerment Series or if you’d like to suggest a topic for a future webinar, please Ask a Question.
To get medical information on VEDS from a webinar in The Marfan Foundation’s Virtual Medical Symposium Series, click here.
The Marfan Syndrome and Related Conditions Empowerment Series is supported by an educational grant from the
Chu and Chan Foundation.