Vascular Ehlers-Danlos Syndrome Share Your Story-The VEDS Movement

Share your story with Vascular Ehlers-Danlos syndrome (VEDS) with us. We may use your story in newsletters, on our website, and in other communications from The VEDS Movement or The Marfan Foundation.

Share Your Story:

First Name

Last Name

I wish to remain anonymous

YesNo

Mobile:

Street Address

City

Country

State

Postal Code

Provinces

State/Province

Condition connection:

I am affected by:

My diagnosis is:

They are affected by:

Their diagnosis is:

Your Story

Tell us about yourself and about living with VEDS:

Have a photo to add to your story?
Add it here!

Names of people in the photo:

Photo Location:

I am willing to be interviewed to discuss my story further

YesNo

Collected stories may be used in future Foundation publications, both print and online.

Contact rrodarmer@thevedsmovement.org for details.

Read stories from other people living with Vascular Ehlers-Danlos Syndrome here.

Share Your Story

Share Your Story:

Search Our Site

Go to…

Search Our Site

Contact Us