Through research, patient support, and education, we charge forward to create better outcomes for everyone affected by Vascular Ehlers-Danlos Syndrome.
We tirelessly advance the research for treatments that save lives and dramatically enhance quality of life for affected individuals.
- Through our research grant program, we are strengthening a growing community of expert researchers committed to VEDS.
- We urge government to fund the research that will improve and save lives.
- We facilitate the sharing of knowledge about VEDS through conferences, symposia, and partnerships with governmental agencies and other health organizations.
- We provide a supportive community for everyone affected by VEDS.
Read more about our staff and leadership.