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What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

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kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

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Latest News

08 Dec
Las inscripciones están abiertas para la Cumbre sobre el Síndrome de Marfan y Condiciones Afines

Ya están abiertas las inscripciones para la Cumbre de la Fundación Marfan: Información educativa sobre Marfan, Loeys-Dietz,

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09 Nov
Professional Advisory Board Issues New Statement on COVID-19 Vaccines for Children

The Foundation’s Professional Advisory Board, which is comprised of the country’s foremost experts on Marfan, Loeys-Dietz, and

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03 Aug
The Marfan Foundation Announces Updated Research Grant Program to Facilitate Transformational Science

The Marfan Foundation, which has funded 158 research grants and initiatives since 1989, is proud to announce

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