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What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

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kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

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Latest News

14 Mar
Registration is Open for The Marfan Foundation’s 39th Conference in Chicago, July 13-16

The Marfan Foundation, in conjunction with Ann & Robert H. Lurie Children's Hospital of Chicago and Northwestern

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21 Feb
Important Announcement from The VEDS Movement

Greetings.... It is with mixed emotions we announce that Katie Wright will be leaving the Foundation next

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16 Dec
The Foundation Announces Largest Research Grant in Its History

The Marfan Foundation has awarded its largest research grant in history, the Everest Award, as well as

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