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What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

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kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

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Latest News

22 Feb
The Marfan Foundation Launches Kids Club, a Virtual Social Group for Children

Parents have asked...we've responded! Kids Club, our new virtual group, is for children ages 9-12 with Marfan

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05 Jan
International E3 Summit Presentations Now Available on YouTube

The Marfan Foundation has made the 60 English presentations given during its International E3 Summit available on its

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22 Dec
PAB Issues Statement on Covid-19 Vaccine

The Marfan Foundation announced today a statement from its Professional Advisory Board (PAB) about the use of

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