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Our Mission
Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).
By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.
Latest News
05
Jan
International E3 Summit Presentations Now Available on YouTube
The Marfan Foundation has made the 60 English presentations given during its International E3 Summit available on its
22
Dec
PAB Issues Statement on Covid-19 Vaccine
The Marfan Foundation announced today a statement from its Professional Advisory Board (PAB) about the use of
10
Nov
The Marfan Foundation Announces 2020 Research Grant Program Award Recipients, Including a Study for VEDS
The Marfan Foundation this week announced that it is awarding $675,000 to seven physicians/scientists as part of
