Our Mission
Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).
By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.
Latest News
15
Oct
Members of the VEDS Community and The VEDS Movement’s Steering Committee Share Their Experiences with the FDA
On October 7, as part of VEDS Action Month, several of The VEDS Movement’s Steering Committee members
13
Oct
NIH Researchers Launch Study to Understand Health Impacts of COVID-19 on those with VEDS, Marfan, and Loeys-Dietz
Help NIH Researchers understand the health impacts of COVID-19 on people with Marfan, VEDS, and Loeys-Dietz Researchers
13
Oct
Tony Yasick, Board Member of The Marfan Foundation, Shares His Story with VEDS in USA Today
Tony Yasick, an anesthesiologist, chair of the Defy Foundation, and Marfan Foundation Board Member, shared his story
