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What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

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kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

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Latest News

01 Sep
VEDS Emergency Awareness Project Update

Earlier this year, we announced a major donation from the Daskal Family Foundation, led by Ierachmiel Daskal,

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26 Aug
Research Topics are the Focus of 2022-2023 Webinar Series

This year, The Marfan Foundation’s webinar series is focusing on the latest research related to Marfan, Loeys-Dietz,

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16 Aug
Aytu BioPharma Receives Funding for Initiation of the PREVEnt Trial in Vascular Ehlers-Danlos Syndrome (VEDS)

The specialty pharmaceutical company, Aytu BioPharma, announced an update today for the VEDS community on the PREVEnt trial for enzastaurin.

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