Menu
  • VEDS
    • What is Vascular Ehlers-Danlos Syndrome?
    • What are the signs?
    • Is Vascular Ehlers-Danlos Syndrome Inherited?
    • How is the body affected?
  • What to Expect
    • Diagnosis
    • Emergency Situations
    • Emergency Preparedness
    • Treatment and Management
      • Medications
      • Imaging
      • Maintaining Healthy Bowel Habits
      • Circumstances to Avoid
      • Developing Your Care Team
    • Pregnancy
  • Resources
    • Ask a Question
    • Find a Doctor
    • Webinars
    • Virtual Support Groups
    • Parent Toolkit
      • School Safety
      • Your Child’s Doctor and Healthcare
      • Pediatric Hospitality Program
      • Resources and Support
    • Past Conference Recordings
    • For Health Professionals
      • Management Overview
      • Diagnostic Tools
      • Contact a VEDS Expert
      • Continuing Medical Education (CME)
      • Grand Rounds
      • Information for the Emergency Department
    • Emergency Preparedness
  • Events
    • Conference
    • Symposiums
    • Marfan Foundation Walk for Victory
    • Camps for Kids and Families
    • Virtual Benefit BINGO
    • VEDS Action Month
    • VEDS Birthday Bash
  • Research
    • For Researchers
      • Research Grants
      • Find Study Participants
      • VEDS Scientific Meeting
    • For Patients
      • Participate in a Research Study
      • Current Research Studies
    • VEDS Collaborative
  • Volunteer
    • Social Media Awareness Team
    • Legislative Ambassadors
    • School Nurse Champions
    • Community Action Team
    • Event Volunteers
    • Writing Group
  • Community Corner
    • Community Stories
    • Share Your Story
  • About Us
    • The VEDS Movement
    • How We Help
    • Leadership
    • News
    • Annual Report and Financials
    • Contact Us
  • Donate
  • Free Medical IDs Now Available

    Learn More

  • Start shopping here!

  • COVID-19 Resources and Updates

  • A woman with long curly hair wearing yellow sweater in a conference room-

    Find a Doctor

  • woman in labcoat looking in microscope

    Participate in a Study

  • teddy bear with bandaid on head and thermometer under armpit

    Child Facing Surgery? Get Help.

What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

Learn More

 

kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

Our Values


What is Organizing

Euismod magna, at iaculis purus nulla eu nunc uisque volutpat lectus eu posuere blandit. Nunc non nulla consectetur.ss

1. Awesome Design.

Euismod magna, at iaculis purus nulla eu nunc uisque volutpat lectus eu posuere blandit. Nunc non nulla consectetur.

2. Premium Sliders.

Euismod magna, at iaculis purus nulla eu nunc uisque volutpat lectus eu posuere blandit. Nunc non nulla consectetur.

3. Fully Responsive.

Euismod magna, at iaculis purus nulla eu nunc uisque volutpat lectus eu posuere blandit. Nunc non nulla consectetur.

4. Great Shortcodes.

Euismod magna, at iaculis purus nulla eu nunc uisque volutpat lectus eu posuere blandit. Nunc non nulla consectetur.

5. Well Documented.

Euismod magna, at iaculis purus nulla eu nunc uisque volutpat lectus eu posuere blandit. Nunc non nulla consectetur.

READ MORE


 

Join The Movement

Make Change.

Get Updates
Receive news and information from The VEDS Movement.
Stay in Touch
Have a Question?
Our Help & Resource Center is available to help.
Ask a Question
Donate
Help us make meaningful changes for those affected by VEDS
Donate

What Clients Said?

People Say Is Empty!

Latest News

16 Aug
Aytu BioPharma Receives Funding for Initiation of the PREVEnt Trial in Vascular Ehlers-Danlos Syndrome (VEDS)

The specialty pharmaceutical company, Aytu BioPharma, announced an update today for the VEDS community on the PREVEnt trial for enzastaurin.

Read More
27 Jul
Aytu BioPharma Announces Initiation of the AR101 PREVEnt Trial for the Treatment of Vascular Ehlers-Danlos Syndrome

Aytu BioPharma, a pharmaceutical company focused on developing and commercializing novel therapeutics, has announced the initiation of

Read More
28 Jun
Acer Therapeutics Announces Initiation of its Pivotal Phase 3 DiSCOVER Trial of EDSIVO™ (celiprolol) for the Treatment of Vascular Ehlers-Danlos Syndrome

Acer Therapeutics Inc. (Nasdaq: ACER), a clinical stage pharmaceutical company focused on the acquisition, development and commercialization

Read More


VIEW ALL NEWS

Our Project

Mauris vel elit enim. Integer gravida mauris non augue euismod, laoreet luctus libero hendrerit. Vivamus viverra nulla id purus porta rhoncus.
Morbi viverra malesuada luctus.

  • All

Sorry, photo gallery is empty.

Our Client

Mauris vel elit enim. Integer gravida mauris non augue euismod, laoreet luctus libero hendrerit. Vivamus viverra nulla id purus porta rhoncus.
Morbi viverra malesuada luctus.

Get In Touch

Send us a message & we will be in touch

2 + 5 =

 

Subscribe Newsletter

There are many variations of passages of lorem there are many

The VEDS Movement is a division of
The Marfan Foundation. | Privacy Statement

Information for the Emergency Department

Search Our Site
Contact Us

22 Manhasset Avenue, Port Washington, NY 11050

800.862.7326

Copyright © 2021. All rights reserved