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What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

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kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

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Latest News

17 Jun
Acer Therapeutics Inc. Announces DISCOVER Clinical Trial for EDSIVO™ (Celiprolol)

Acer Therapeutics Inc. has announced it will be conducting a pivotal clinical trial in patients with COL3A1+

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10 Jun
The Marfan Foundation to Honor Dr. James Black, Dr. Firas Mussa, Barbara Lerman, CPA, and the Legacy of Ann Reinking at Heartworks Across America, on June 24

Heartworks Across America, The Marfan Foundation’s signature event, will honor two incredible doctors, an outstanding volunteer leader,

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07 Jun
Registration Now Open for The Marfan Foundation’s First-Ever Virtual Annual Conference, July 8-11, 2021

The Marfan Foundation is pleased to announce that registration is now open for our first-ever Virtual Annual Conference, July

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