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Our Mission
Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).
By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.
Latest News
VEDS Emergency Awareness Project Update: American Academy of Emergency Medicine Approves VEDS CME Course Created by The VEDS Movement and the Sullivan Group
The VEDS Movement continues to make strides in medical education about Vascular Ehlers-Danlos syndrome (VEDS). Educating healthcare
New VEDS Research Study: Parental Decision-Making Process and Post-Test Communication Around Predictive Genetic Testing for Children for Vascular Ehlers Danlos Syndrome
Researchers at the MGH Institute of Health Professions are asking you to consider participating in the online
New 2022 Guidelines for the Diagnosis and Management of Aortic Disease Published by the American College of Cardiology and American Heart Association
By The Marfan Foundation New guidelines for the diagnosis and management of aortic disease were published yesterday
