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Our Mission
Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).
By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.
Latest News
14
Oct
An Example of What She Hoped For: The Life and Legacy of Bella Welch
Bella's family has honored her with gifts totaling $255,000, establishing a memorial research grant in her name.
20
Aug
Essential Care: Mental Health and Life with VEDS
“The mental health burden of living with VEDS is profound,” says Karen MountainJohnson, a licensed clinical mental
20
Aug
Small Events—Big Impact
It was the little touches that made the June 20 Well Kirtland Golf Fundraiser for the VEDS Movement so
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