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What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

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kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

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Latest News

25 Mar
New Statement from our President and CEO, Michael Weamer (3/25/20)

The Marfan Foundation and The VEDS Movement are here for you today and the better days ahead! 

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25 Mar
Events Update

In response to the current pandemic, The VEDS Movement is postponing several in-person events scheduled this Spring.

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17 Mar
New Statement from our President and CEO, Michael Weamer (3/17/20)

As the current health situation with the coronavirus evolves, I want to keep you posted on the

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