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What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

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kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

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Latest News

28 Mar
Staying Informed: Recent Research Advances in VEDS Treatment

Introduction  For those living with Vascular Ehlers-Danlos Syndrome (VEDS) or supporting loved ones with this condition, staying

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13 Jun
Insights into the Natural History of Vascular Ehlers-Danlos Syndrome (VEDS): Dutch Cohort Study

A Dutch VEDS natural history was recently published. The article provides a comprehensive look at the natural

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10 Jan
Join Our Exclusive Q&A with Dr. Hal Dietz on VEDS Research

We are excited to announce a special event for our community and healthcare professionals with an interest

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