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Who We Are
We are a division of The Marfan Foundation dedicated to charging forward and making change for everyone affected by VEDS.
Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).
By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.
Latest News
The VEDS Movement Launches TheVEDSMovement.org
The VEDS Movement, a new division of The Marfan Foundation, is excited to announce the launch of
New Virtual Support Groups for VEDS
The Marfan Foundation is pleased to announce four new virtual support groups for the VEDS community. This
The Marfan Foundation Adds Vascular Ehlers-Danlos Syndrome Division
The Marfan Foundation, which saves lives and improves the quality of life for people with Marfan, Vascular
