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What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

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kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

Our Values


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Latest News

18 Apr
New Director Named for The VEDS Movement

Ryan Rodarmer, MS has been selected by The Marfan Foundation to lead The VEDS Movement.  Ryan has

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24 Mar
Foundation Receives Mental Health Impact Grant from Global Genes

The Marfan Foundation is honored to receive a grant from Global Genes to support mental health programming

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14 Mar
Registration is Open for The Marfan Foundation’s 39th Conference in Chicago, July 13-16

The Marfan Foundation, in conjunction with Ann & Robert H. Lurie Children's Hospital of Chicago and Northwestern

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