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What is VEDS?

Vascular Ehlers-Danlos Syndrome (VEDS) is a life-threatening genetic connective tissue condition. Early diagnosis can save lives.

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kids with VEDS
 

Our Mission

Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).

By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.

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Latest News

03 Aug
The Marfan Foundation Announces Updated Research Grant Program to Facilitate Transformational Science

The Marfan Foundation, which has funded 158 in research grants and initiatives since 1989, is proud to

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02 Aug
The VEDS Collaborative is Joining The VEDS Movement

The VEDS Collaborative, the community of stakeholders committed to patient-centered research in Vascular Ehlers-Danlos Syndrome (VEDS), will

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17 Jun
Acer Therapeutics Inc. Announces DISCOVER Clinical Trial for EDSIVO™ (Celiprolol)

Acer Therapeutics Inc. has announced it will be conducting a pivotal clinical trial in patients with COL3A1+

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