Awareness of Vascular Ehlers-Danlos syndrome, or VEDS and related conditions leads to early diagnosis, research, and quality care. The Social Media Awareness Team is the most powerful way we can raise awareness. This is through you, our volunteers. Your circles of relatives, friends, co-workers, and neighbors, your knowledge, your personal journey, and your commitment cannot be matched by anyone outside of our community.
Are you active on social media? Whether you are on Facebook, Instagram, Twitter, or Linked In – or all of them – you can get the inside track on announcements and new graphics. By sharing the Movement’s posts and creating your own, you will help us create a world in which VEDS is commonly known.
Email volunteer@marfan.org to get involved with the Social Media Awareness Team!
Go back to see to other teams.