Volunteer with The VEDS Movement
Volunteer with The VEDS Movement and The Marfan Foundation and give back to the Vascular Ehlers-Danlos syndrome (VEDS) community. Join the Movement to save lives of everyone affected by VEDS.
There are many ways to become a volunteer for The VEDS Movement- from one-time projects to ongoing campaigns, community events to set up, or outreach from the comfort of your own home. Regardless of your age or location, there are many ways for you to get involved.
The VEDS Movement Volunteer Teams
VEDS Awareness Team
This volunteer team is for those interested in helping spread awareness and knowledge of VEDS through talks at hospitals, meetings with first responders or doctors, press, video, social media, and similar opportunities. If you are interested in joining the team, let us know here.
VEDS Speaker Series: Grand Rounds Team
This volunteer team is for those interested in helping spread awareness and knowledge of VEDS through Grand Rounds talks at major hospitals and teaching hospitals.
Grand Rounds help doctors and healthcare professionals stay updated in areas which may be outside of their core practice. The VEDS Movement is happy to help organize this presentation with you and your doctor. If you are interested in organizing a Grand Rounds with your doctor at their hospital, let us know here.
The Marfan Foundation Volunteer Teams
Social Media Awareness Team
Got followers? Use your social media influence and get the inside track on announcements and new graphics from the Movement. Learn more.
Legislative Ambassadors
Your voice matters! Share your story and contact your local elected officials to let them know the issues that are important to the VEDS community. Join the Legislative Ambassadors team.
School Nurse Champions
School nurses are our first line of defense. Join our national effort to raise awareness of VEDS in schools across the country.
Community Action Team
Local events are a great way to raise awareness and raise critical funds for The VEDS Movement. Get involved by organizing an event in your area.
Event Volunteers
Want to help out at our events? Find out how you can help.
Writing Group
Utilize your writing talent to help us create content for all sorts of VEDS Movement communication platforms.