Menu
  • VEDS
    • What is Vascular Ehlers-Danlos Syndrome?
    • What are the signs?
    • Is Vascular Ehlers-Danlos Syndrome Inherited?
    • How is the body affected?
  • What to Expect
    • Diagnosis
    • Emergency Situations
    • Emergency Preparedness
    • Treatment and Management
      • Medications
      • Imaging
      • Maintaining Healthy Bowel Habits
      • Circumstances to Avoid
      • Developing Your Care Team
    • Pregnancy
  • Resources
    • Ask a Question
    • Find a Doctor
    • Webinars
    • Virtual Support Groups
    • Parent Toolkit
      • School Safety
      • Your Child’s Doctor and Healthcare
      • Pediatric Hospitality Program
      • Resources and Support
    • Past Conference Recordings
    • For Health Professionals
      • Management Resources
      • Publications
      • Contact a VEDS Expert
      • Continuing Medical Education (CME)
      • Grand Rounds
      • Information for the Emergency Department
    • Emergency Preparedness
  • Events
    • Conference
    • Symposiums
    • Marfan Foundation Walk for Victory
    • Camps for Kids and Families
    • Virtual Benefit BINGO
    • VEDS Action Month
    • VEDS Birthday Bash
    • The Marfan Foundation Events
  • Research
    • For Researchers
      • Research Grants
      • Find Study Participants
      • VEDS Scientific Meeting
    • For Patients
      • Participate in a Research Study
      • Current Research Studies
    • VEDS Collaborative
  • Volunteer
    • VEDS Awareness Team
    • Speaker Series: Grand Rounds Team
    • Social Media Awareness Team
    • Legislative Ambassadors
    • School Nurse Champions
    • Community Action Team
    • Event Volunteers
    • Writing Group
  • Community Corner
    • Community Stories
    • Share Your Story
  • About Us
    • The VEDS Movement
    • How We Help
    • Leadership
    • News
    • Annual Report and Financials
    • Contact Us
  • Donate

Symposiums

One Day Educational Symposiums at Locations Throughout the U.S.

Five woman standing together smiling

Our full-day regional educational symposiums bring our conference experience to different regions of the country, creating connections for people with Vascular Ehlers-Danlos Syndrome (VEDS). Each symposium has a full schedule of medical presentations from medical experts, including members of the Foundation’s Professional Advisory Board, and experts on quality of life issues that affect people living with VEDS, Marfan Syndrome, and related conditions. They also feature a Creating Connections luncheon to give attendees an opportunity to network with others who have the same diagnosis.

Sample presentation topics include:

  • Overview of Aortic Aneurysm Syndromes: Marfan syndrome, Loeys-Dietz syndrome, Thoracic Aortic Aneurysm/Dissection
  • Overview: Vascular Ehlers-Danlos Syndrome 
  • Marfan and Related conditions: Cardiac Issues
  • Marfan and Related conditions: Orthopedic Issues including scoliosis, foot issues, hip issues
  • Physical Therapy for Connective Tissue Conditions
  • Marfan and Related conditions: Eye Issues
  • Coping with a Chronic Condition
  • Support Group for Parents
  • Support Group for Family Members
  • Communicating with Your Healthcare Team
  • Disability and Social Security
  • Ask a Genetic Counselor
  • Exercise and Staying Fit
  • Preparing for emergencies

The educational symposiums focus on creating connections for people with Vascular Ehlers-Danlos Syndrome, Marfan, Loeys-Dietz, and related conditions.

Upcoming symposiums will be listed on The Marfan Foundation’s website as they are announced. The link below will take you to the Foundation’s website:

View Symposiums

This page will be updated when registration for each symposium is available. Check this page for updates, or get updates from us directly.

Search Our Site

Go to…

  • Virtual Benefit BINGO
  • Conference
  • Symposiums
  • Marfan Foundation Walk for Victory
  • Camps for Kids and Families
  • VEDS Action Month
  • The Marfan Foundation Events
  • VEDS Birthday Bash

The VEDS Movement is a division of
The Marfan Foundation.
| Privacy Statement

Information for the Emergency Department

Search Our Site
Contact Us

22 Manhasset Avenue, Port Washington, NY 11050

800.862.7326

Copyright 2022. All rights reserved