One Day Educational Symposiums at Locations Throughout the U.S.
Our full-day regional educational symposiums bring our conference experience to different regions of the country, creating connections for people with Vascular Ehlers-Danlos Syndrome (VEDS). Each symposium has a full schedule of medical presentations from medical experts, including members of the Foundation’s Professional Advisory Board, and experts on quality of life issues that affect people living with VEDS, Marfan Syndrome, and related conditions. They also feature a Creating Connections luncheon to give attendees an opportunity to network with others who have the same diagnosis.
Sample presentation topics include:
- Overview of Aortic Aneurysm Syndromes: Marfan syndrome, Loeys-Dietz syndrome, Thoracic Aortic Aneurysm/Dissection
- Overview: Vascular Ehlers-Danlos Syndrome
- Marfan and Related conditions: Cardiac Issues
- Marfan and Related conditions: Orthopedic Issues including scoliosis, foot issues, hip issues
- Physical Therapy for Connective Tissue Conditions
- Marfan and Related conditions: Eye Issues
- Coping with a Chronic Condition
- Support Group for Parents
- Support Group for Family Members
- Communicating with Your Healthcare Team
- Disability and Social Security
- Ask a Genetic Counselor
- Exercise and Staying Fit
- Preparing for emergencies
The educational symposiums focus on creating connections for people with Vascular Ehlers-Danlos Syndrome, Marfan, Loeys-Dietz, and related conditions.
Upcoming symposiums will be listed here as they are confirmed.
This page will be updated when registration for each symposium is available. Check this page for updates, or get updates from us directly.