We help researchers studying Vascular Ehlers-Danlos Syndrome (VEDS) find study participants.
We inform our community about studies that are open for enrollment. We describe the study rationale and objectives, explain some of the eligibility criteria and what participation may involve, and provide contact information for additional information or assistance with enrollment. If you have a research study you would like listed on our website and need participants with Vascular Ehlers-Danlos Syndrome, see our guidelines and how-to here.
To facilitate enrollment, we educate our community about the benefits of being part of a study, what to expect, and things they should know before making a decision.
Depending on the study or need, we may be able to provide researchers with other types of assistance.
To obtain more information or discuss your study, please e-mail research@marfan.org