Join our School Nurse Champions group of volunteers in a national effort to raise awareness of Vascular Ehlers-Danlos syndrome, or VEDS, among school nurses. This group of volunteers will represent The VEDS Movement at state school nurse meetings (conferences) and connect with school nurses in their town and district. We’ll arm you with the materials and training to effectively communicate with school nurses, who are first-line protectors of our children’s healthcare.
Every state has a school nurses association that holds a one to two day annual meeting featuring vendor exhibits. This is a great opportunity to ensure that school nurses in your state know the signs of VEDS and related conditions and the special considerations for affected children in their school.
We can provide the exhibit fee and send you materials for distribution (informational brochure, fact sheets, swag). Join the School Nurse Champions team for Vascular Ehlers-Danlos Syndrome by emailing volunteer@marfan.org.
Go back to see other volunteer teams.