Events

Two boys with vEDS making faces at camera

Meet other families from all over the US and the leading medical experts.

Raise awareness in your area by joining.

Meet other children at camps designed for kids and families with VEDS.

October is VEDS Action Month! Learn more and get involved.


Meet regional experts and families in your area.

Join us for an evening of fun!

An incredible three-week virtual program featuring medical experts from all over the world on an array of topics related to the diagnosis and treatment of Marfan syndrome, Loeys-Dietz syndrome, VEDS (Vascular Ehlers-Danlos syndrome), Stickler syndrome, and other genetic aortic conditions. Participate and learn from the comfort of your own home!