Do you have a question about Vascular Ehlers-Danlos Syndrome? We can help.
- Contact our Help & Resource Center: 800-862-7326 ext. 126
- Submit a question using the form below
The registered nurse in our Help & Resource Center can answer your question about Vascular Ehlers-Danlos Syndrome Monday-Friday 9:00 AM to 5:00 PM Eastern Time. We will respond to your inquiry as soon as possible. If you are currently experiencing an emergency or crisis, you should contact your personal doctor, call 911, or go to the nearest emergency room.
DISCLAIMER
The VEDS Movement, a division of The Marfan Foundation (the “Foundation”), is a health advocacy organization. The Foundation does not provide medical advice or treatment. We are not a healthcare provider. It is important to realize that information provided by the Foundation is not meant as a replacement for proper care from a doctor, therapist, etc. Information provided by the Foundation is not a substitute for medical treatment or psychological care. It is vital that you talk with your healthcare providers regarding the diagnosis and treatment of Marfan syndrome and related conditions and your symptoms/features. Minors should consult with a parent/legal guardian when considering treatment and providers.
Healthcare provider information is supplied solely by the providers themselves and is not checked or warranted by The Marfan Foundation. The Foundation provides contact information for healthcare providers who are known to have seen patients with Marfan syndrome and related conditions. The Foundation does not endorse or recommend individual healthcare providers. You are responsible for interviewing and selecting the practitioner. By requesting healthcare provider resources you understand and agree that the Foundation and its affiliates are not responsible for any providers’ services or lack thereof.
CONFIDENTIALITY
Except with your express consent or as permitted or required by law (or as otherwise stated in the website Privacy Statement), all information you provide is strictly confidential and never shared outside our organization. Not knowing who you are, where you live, and the reason for your inquiry may limit, or even prevent, our ability to respond to your questions and concerns.
