Follow, Share, Engage
#chargingforward4VEDS
October kicks off Vascular Ehlers-Danlos syndrome (VEDS) Action Month — a great time to come together, spread the word and support one another. This year, our theme is “Empowering the Community.” We’ll shine a light on invaluable VEDS resources (listed below) and share useful advice from our community members.
The first step in Action Month? Join us on social media! Hit like, share, and leave comments! Help our community stay well-informed and connected. And remember to use #chargingforward4VEDS!
Having trouble knowing what to share on social? You can start by sharing our offerings. Want to make it more personal? Consider sharing a moment where you led the charge for VEDS awareness, expressing gratitude towards a medical professional who made a difference, or celebrating someone who’s been your rock. Share any part of your VEDS journey you’re comfortable with, from diagnosis to hopes for the future. Don’t forget to use the hashtag #chargingforward4VEDS and tag us @VEDSMovement on X (formerly Twitter), Facebook, and Instagram, so we can celebrate, learn, and advocate together! Together, we’ll light the way for everyone touched by VEDS, making this month full of learning, support, and team effort.
VEDS Resource Spotlight
Week One
First Responder Quick Guide Use this resource to build a bridge between our community and first responders, providing crucial knowledge about VEDS in emergencies. Stay tuned for a helpful video from a member of the VEDS community with quick tips about the guide.
How-To Document with Practical Tips
Week Two
Emergency Preparedness Kit Week two spotlights our Emergency Preparedness Kit: a collection of important items to have ready for emergencies. The kid is like a silent guardian by your side! Look out for an enlightening video from a VEDS community member with practical tips about using this resource!
How-To Document with Practical Tips
Week Three
Share Your Story Form In week three, we invite you to share your VEDS story. Your story can be a lantern in the dark for someone also facing a VEDS diagnosis. Coming soon, our video quick tips for sharing your story.
How-To Document with Practical Tips
Week Four
New Resources! Physician Infocard & Hospital Sign We are excited to unveil two new and important resources—the Physician Infocard and the Hospital Sign. More information about these important resources will be coming soon!
SAVE THE DATE! | VEDS Fall Costume Party
October 25, 2023
As we wrap up a month of empowerment and education, let’s come together to celebrate our community’s spirit and achievements. Save the date for our VEDS Fall Costume Party on October 25th at 7pm EST! This festive event will offer a chance to connect with community members, share stories, and enjoy fun breakout sessions. It’s a lively way to highlight our collective journey through VEDS Action Month. Click the button below to register and prepare for a delightful evening of camaraderie and celebration! #chargingforward4VEDS
