Some of the features of Vascular Ehlers-Danlos Syndrome (VEDS) are common in the general population; however, treatment is sometimes more complex because of the underlying connective tissue disorder. In addition, there are important considerations because the condition affects multiple body systems.
These research papers and publications may help guide VEDS management. Have a specific question about caring for someone with VEDS? Get connected with an expert.
Diagnosis, natural history, and management in vascular Ehlers–Danlos syndrome
Byers, et al. 2017
A multi-institutional experience in vascular Ehlers-Danlos syndrome diagnosis
Shalhub, et al. 2019
Spontaneous pneumothorax and hemothorax frequently precede the arterial and intestinal complications of vascular Ehlers-Danlos syndrome.
Shalhub, Neptune, et al. 2019
A multi-institutional experience in the aortic and arterial pathology in individuals with genetically confirmed vascular Ehlers-Danlos syndrome.
Shalhub, Byers, et al. 2019
Molecular diagnosis in vascular Ehlers-Danlos syndrome predicts pattern of arterial involvement and outcomes.
Shalhub, Black, et al. 2014
Intestinal Perforation in Children as an Important Differential Diagnosis of Vascular Ehlers-Danlos Syndrome
Keon Young Park, et al. 2019
Bowel perforation in type IV vascular Ehlers-Danlos syndrome. A systematic review.
El-Masri, et al. 2018
Management of colonic complications of type IV Ehlers-Danlos syndrome: a systematic review and evidence-based management strategy.
Speake, et al. 2019
Audit of Gastrointestinal Manifestations in Patients with Loeys–Dietz Syndrome and Vascular Ehlers–Danlos Syndrome
Wang, et al. 2020
FDA Warning on the use of Fluoroquinolones
Arterial Complications of vascular Ehlers-Danlos Syndrome