VEDS Action Day: The “V” in VEDS Matters

Maia speaks into a microphone at the Chicago Walk for Victory, raising awareness for Vascular Ehlers-Danlos syndrome.

Please note: this story discusses and depicts emergency medical experiences. Guest blogger Maia Fleener is living with VEDS and volunteers with the VEDS Movement as an advocate and voice of lived experience. For me, this day is deeply personal. I live every day with Vascular Ehlers-Danlos syndrome (VEDS) – a rare genetic condition that affects the body’s blood vessels,…

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