Strengthening connection, amplifying voices, and moving forward—together.
About the Leaders
Kristi and Dominick bring complementary strengths: decades‑deep lived experience and mentorship; fresh energy grounded in gratitude to the community; and a shared commitment to practical action. They’re focused on clear communication, collaboration with clinicians and researchers, and building an inclusive community where every person impacted by VEDS can find connection and credible information.
Dominick Corso, Chair
Dominick Corso serves as Steering Committee Chair and co-moderator of the VEDS Parents Call, helping to build stronger connections and resources for families navigating this condition. After undergoing emergency aneurysm repair in 2019, Dominick was formally diagnosed with Vascular Ehlers-Danlos syndrome in 2020. That experience strengthened his commitment to ensuring others find support, tools, and community more quickly than he did. Based in Portland, OR, Dominick values the resilience and unity of the VEDS community and believes in empowering patients and families for the unexpected. Outside of advocacy, he enjoys following Notre Dame football, staying active, and making time for travel and good food.
Kristi Posival, Co‑Chair
Kristi Posival is a professional artist based in Baltimore, MD, whose life and work are deeply shaped by resilience and creativity. She holds a degree in Art from St. Norbert College, where she laid the foundation for a lifelong dedication to artistic expression.
Diagnosed with Vascular Ehlers-Danlos syndrome (VEDS) at the age of five, Kristi recently celebrated her 51st birthday—a milestone she embraces with gratitude and strength. She is a passionate advocate for VEDS awareness and proudly supports The VEDS Movement, believing wholeheartedly in the Foundation’s mission to empower and protect future generations.
When she’s not creating art, Kristi finds joy in gardening, traveling, and practicing mindful living—nurturing a deep connection to the world around her.
In Their Words: A Shared Q&A
What inspired you to take on a leadership role in the VEDS Movement?
Dominick: “After an emergency event in 2019 and subsequent diagnosis, I was confused and desperate. My goals include easing the path for diagnosed people to connect with the community and access the tools this group has given me. I am simply carrying forward the mission that helped me so much.”
Kristi: “For me, it was about creating a space where no one feels alone. Leadership isn’t about titles—it’s about being present, listening, and acting. The VEDS community deserves that kind of leadership.”
What is the mission of the VEDS Movement, in your own words?
Dominick: “We are saving lives. By sharing lessons learned and what works within our community, we help people with VEDS make better decisions. Our mission includes strengthening connections, and also honoring those we have lost by sharing their stories.”
Kristi: “The VEDS Movement is about empowerment, awareness, and action. We’re here to amplify patient voices, push for early diagnosis, and ensure access to knowledgeable care and resources. It’s about hope and progress—together.”
What are your main goals as Co-Chairs over the next year?
Dominick: “I am excited to harness the energy of the VEDS community and make sure every member benefits from all that the VEDS Movement and the Marfan Foundation offer. A key goal is ensuring VEDS voices are heard.”
Kristi: “We’re focusing on collaboration—connecting with researchers, healthcare providers, and community members to ensure patients have the resources and care they need from the moment they’re diagnosed.”
How can people get involved with the VEDS Movement?
Dominick: “There are so many ways to connect through events and the wonderful people at the Marfan Foundation. The best way to get involved is to join one of these efforts, maybe a walk or a support call, and know that every contribution matters, sometimes even just listening.”
Kristi: “There are so many ways! Join our events like the Victory Walks and Camps, share your story, donate, or simply follow and share our content online. Every action counts, no matter how small.”
What is one thing you wish more people understood about VEDS?
Dominick: “That VEDS is rarely fully understood, even by doctors, and it can be challenging to navigate. But our community has learned how. Understanding how to work with collaborative doctors who respect your perspective is empowering and worth sharing.”
Kristi: “I wish people understood the strength and resilience of this community. Behind every statistic is a real person, and their courage deserves to be seen and heard.”
What is something personal you would like to share?
Dominick: “I am an avid Notre Dame football fan and live in Portland, Oregon. When not on the couch watching a game, I stay active and healthy so I can cut loose and enjoy time with the community at conference.”
Kristi: “I love travel, painting, and gardening. It reminds me to make space for joy, even in heavy moments. I also work out at the YMCA 3 times a week. I am one of the youngest in the chair workout class and I’m 51, but my favorite thing is when one of the other ladies comments on my workout like, “Look at Kristi, showing off with 5 pound weights today.” It makes me laugh every time and creates space for me to be healthy and strong in a safe environment.”
Final Thoughts?
Dominick: “It is a privilege to be amongst such lovely people and to be part of the VEDS community. I see a bright future ahead for ourselves and for future generations.”
Kristi: “We’re honored to serve this community and walk alongside every person impacted by VEDS. Together, we are stronger, louder, and more powerful. This movement belongs to all of us—thank you for being part of it.”
Ways to Engage Today
- Attend Walk for Victory or family event.
- Join a support call or online group.
- Share your story to help someone else feel less alone.
- Volunteer your time or skills.
- Donate to advance research, education, and support.
If you’re newly diagnosed or looking for support, reach out—we’re here to connect you with resources, people, and practical next steps.
