Author: Olivia Abel

“The mental health burden of living with VEDS is profound,” says Karen MountainJohnson, a licensed clinical mental health counselor who lives with the condition. “I would argue that having mental health support is as vital as having a cardiologist.”  Living with Vascular Ehlers-Danlos syndrome (VEDS) brings unique challenges, but having the right support can make a meaningful difference in how…

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 It was the little touches that made the June 20 Well Kirtland Golf Fundraiser for the VEDS Movement so fun—and so meaningful, says Michelle Henderson, whose daughter, Lucy, age 9, lives with VEDS.  Approximately 120 guests played 18 holes at the St. Denis Golf Club in Chardon, Ohio. They putted for prizes, entered raffles, snacked on hot dogs, and enjoyed dinner afterward. But one of the…

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