Vascular Ehlers-Danlos syndrome, or VEDS, is a genetic aortic and vascular condition that affects the body’s connective tissue. Connective tissue holds all the body’s cells, organs, and tissues together and plays an important role in helping the body grow and develop properly.
Connective tissue is made up of proteins. VEDS is caused by changes in the gene called COL3A1. People with VEDS are born with the condition. These changes create the features and medical problems associated with VEDS.
VEDS can affect many different parts of the body, including the arteries, hollow organs, skin, and lungs. These systems can be prone to tears, which can be life-threatening.
Although VEDS is quite variable, people are often diagnosed when they have easy and frequent bruising that is not explained by other causes and spontaneous bowel and arterial tears or ruptures. Some people have characteristic facial features, thin skin, and tissue fragility.
What Everyone Should Know About VEDS
How Can I Help?
Download our VEDS Action Month Art
and post it to your social media throughout the week.
Spread the Word
Visit our official social media accounts, like, and share our message.
Share Natalie’s Legacy
to help raise awareness about the need for early VEDS diagnosis and awareness of the risk of aortic dissection.
Learn More
Use the resources on this page to better understand aortic emergencies, prevention, and risk. Know the signs and symptoms.
Share Our Infographic
Share the Know the Signs Infographic.
Donate Today
Your contribution saves lives! Donate today to advance education, prevention, and treatment of genetic aortic conditions.
Prepare for Emergencies
Use this resource to build a bridge between our community and first responders, providing crucial knowledge about VEDS in emergencies.
Emergency Preparedness Kit: a collection of important items to have ready for emergencies. This kit is like a silent guardian by your side!
Streamline your healthcare experience with the Physician Infocard and Hospital Sign resources— Together, these resources empower patients to take charge of their care, fostering clarity and confidence in every step of their journey.