Diagnostic Tools
The 2017 International Classification of the Ehlers-Danlos Syndromes is one of the useful diagnostic tools that can diagnose Vascular Ehlers-Danlos Syndrome (VEDS) and other forms of EDS accurately:
https://onlinelibrary.wiley.com/doi/epdf/10.1002/ajmg.c.31552
A family history of the disorder, arterial rupture, or dissection in individuals less than 40 years of age, unexplained sigmoid colon rupture, or spontaneous pneumothorax in the presence of other features consistent with VEDS should all lead to diagnostic studies to determine if the individual has VEDS.”
The 2017 International Classification of the Ehlers-Danlos Syndromes
Reference Sheets
These reference sheets were developed to provide information for medical professionals to help guide management and treatment for their patient with VEDS. The reference sheets are reviewed by members of our Professional Advisory Board.
Caring for an individual with VEDS? See research papers to help guide management and treatment.
