VEDS Action Day: The “V” in VEDS Matters

Maia speaks into a microphone at the Chicago Walk for Victory, raising awareness for Vascular Ehlers-Danlos syndrome.

Please note: this story discusses and depicts emergency medical experiences. Guest blogger Maia Fleener is living with VEDS and volunteers with the VEDS Movement as an advocate and voice of lived experience. For me, this day is deeply personal. I live every day with Vascular Ehlers-Danlos syndrome (VEDS) – a rare genetic condition that affects the body’s blood vessels,…

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Important Announcement from The VEDS Movement

Graphic announcement about Katie's departure from The VEDS Movement

Greetings…. It is with mixed emotions we announce that Katie Wright will be leaving the Foundation next month to pursue other opportunities.  From its inception, The VEDS Movement has excelled under Katie’s leadership, Jo’s terrific support, a great community, and the commitment of the Foundation and our PAB to The VEDS Movement.  And, Katie’s knowledge, commitment, enthusiasm, and creativity…

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