Tag: The Marfan Foundation VEDS Division

Ryan Rodarmer, MS has been selected by The Marfan Foundation to lead The VEDS Movement.  Ryan has a BS Degree in Biology and a Masters in Genetic Counseling.  He is also a survivor of a type A aortic dissection due to hereditary thoracic aortic disease.  As a genetic counselor Ryan has educated, advocated for and comforted many families affected…

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The Marfan Foundation, which saves lives and improves the quality of life for people with Marfan, Vascular Ehlers-Danlos (VEDS), Loeys Dietz, and other genetic aortic conditions, is expanding with a new division dedicated to programs and support services for VEDS. The Foundation has named Katelyn Wright, a highly regarded patient advocate in the VEDS community, director of the new…

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