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VEDS Action Month

Vascular Ehlers-Danlos syndrome, or VEDS, is a genetic aortic and vascular condition that affects the body’s connective tissue. Connective tissue holds all the body’s cells, organs, and tissues together and plays an important role in helping the body grow and develop properly.

Connective tissue is made up of proteins. VEDS is caused by changes in the gene called COL3A1. People with VEDS are born with the condition. These changes create the features and medical problems associated with VEDS.

VEDS can affect many different parts of the body, including the arteries, hollow organs, skin, and lungs. These systems can be prone to tears, which can be life-threatening.   

Although VEDS is quite variable, people are often diagnosed when they have easy and frequent bruising that is not explained by other causes and spontaneous bowel and arterial tears or ruptures. Some people have characteristic facial features, thin skin, and tissue fragility.

What Everyone Should Know About VEDS

What is VEDS?
Living With VEDS
VEDS Quick Facts
Resources

How Can I Help?

Download our VEDS Action Month Art

and post it to your social media throughout the week.

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Spread the Word

Visit our official social media accounts, like, and share our message.

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Share Natalie’s Legacy

to help raise awareness about the need for early VEDS diagnosis and awareness of the risk of aortic dissection.

Read & Share

Learn More

Use the resources on this page to better understand aortic emergencies, prevention, and risk. Know the signs and symptoms.

Resources

Share Our Infographic

Share the Know the Signs Infographic.

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Donate Today

Your contribution saves lives! Donate today to advance education, prevention, and treatment of genetic aortic conditions.

Donate Now

Prepare for Emergencies

Use this resource to build a bridge between our community and first responders, providing crucial knowledge about VEDS in emergencies.

  • First Responder Quick Guide
  • How-To Document with Practical Tips

Emergency Preparedness Kit: a collection of important items to have ready for emergencies. This kit is like a silent guardian by your side!

  • Emergency Preparedness Kit
  • How-To Document with Practical Tips

Streamline your healthcare experience with the Physician Infocard and Hospital Sign resources— Together, these resources empower patients to take charge of their care, fostering clarity and confidence in every step of their journey.

  • Physician Infocard
  • Hospital Sign
  • How-To Document with Practical Tips

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