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Our Mission
Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).
By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.
Latest News
13
Jun
Insights into the Natural History of Vascular Ehlers-Danlos Syndrome (VEDS): Dutch Cohort Study
A Dutch VEDS natural history was recently published. The article provides a comprehensive look at the natural
10
Jan
Join Our Exclusive Q&A with Dr. Hal Dietz on VEDS Research
We are excited to announce a special event for our community and healthcare professionals with an interest
22
Dec
Finding Support at the Holidays & Beyond
As we navigate through the holiday season, a time of joy and togetherness, we're also reminded of
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