Tell the world why the "V" matters to you!
Our Mission
Our mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).
By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.
Latest News
Aortic Dissection Survivor Story: From Survivor to Advocate and a Roar for Awareness
Editor's Note: The following post was written by our Director, Ryan Rodarmer, and was originally featured by
VEDS Steering Committee Co-Chairs: Meet Dominick Corso & Kristi Posival
Strengthening connection, amplifying voices, and moving forward—together. About the Leaders Kristi and Dominick bring complementary strengths: decades‑deep
VEDS Treatment Research: Recent Advances in Celiprolol and Irbesartan Studies
Introduction For those living with Vascular Ehlers-Danlos Syndrome (VEDS) or supporting loved ones with this condition, staying
