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COVID-19 Updates for our Community

In light of the current public health crisis due to COVID-19, The VEDS Movement and The Marfan Foundation are providing regular updates for the Marfan, VEDS, Loeys-Dietz, and related condition community. Our Professional Advisory Board has collaborated with us to bring you the best medical information on COVID-19 in relation to our community. We are complementing this with guidance to help you cope with the added stress and anxiety that this situation is causing.

As always, the Centers for Disease Control and Prevention (CDC) is a great resource for general information on COVID-19. We recommend reviewing the CDC’s steps to prevent illness and their statement for people at risk for serious illness from COVID-19, which includes those with chronic disease.

If you have additional medical questions, please submit them to our Help & Resource Center through our website.

Medical Information

COVID-19 Q&A- April 2022
COVID-19 Update for our Community - Webinar - November 8, 2021
PAB Statement on Vaccines, Delta Variant, and More - September 1, 2021
COVID-19 Updates for the Marfan, Loeys-Dietz, and VEDS Community- April 26, 2021
Webinar: The Latest Research on COVID-19 Related to Aortic Disease- Jan 14, 2021
COVID Vaccine Statement- Dec 22, 2020
Resuming Medical Care- May 5, 2020
Professional Advisory Board Statement- March 16, 2020
Webinar: COVID-19- Your Questions Answered- March 31, 2020
Webinar: COVID-19 and the Marfan and Related Conditions Community- March 12, 2020
COVID-19 Myths Busted
COVID-19 High Risk Patients and Ventilators

Quality of Life Information

Webinar: Conversation About Coping

The VEDS Movement News

Letter from the President/CEO: Annual Conference Update- May 5, 2020
Recording of The Marfan Foundation Town Hall- April 14, 2020
Statement from the Foundation's President and CEO- March 25, 2020
Statement from the Foundation's President and CEO- March 17, 2020
Statement from the Foundation's President and CEO- March 13, 2020
Events Update

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