NIH Researchers Launch Study to Understand Health Impacts of COVID-19 on those with VEDS, Marfan, and Loeys-Dietz

Help NIH Researchers understand the health impacts of COVID-19 on people with Marfan, VEDS, and Loeys-Dietz

Researchers at the National Institutes of Health (NIH) are interested in how COVID-19 impacts the health of people with Vascular Ehlers-Danlos Syndrome (VEDS), Marfan Syndrome, and Loeys-Dietz. You can help by completing an online survey about your experiences.

The survey is open to anyone with these conditions, regardless of whether there has been exposure or infection with COVID-19.  It takes around 30 minutes to complete and is available in English and Spanish.

The study is coordinated by NIH scientists Dr. Beth Kozel, Dr. Robert Hufnagel, and Dr. Tiffany Powell-Wiley in collaboration with numerous NIH physicians and researchers and community advocacy groups. For more information, email

This survey is open until the end of October. Take the survey at