Parents have asked…we’ve responded!
Kids Club, our new virtual group, is for children ages 9-12 with Marfan syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Loeys-Dietz syndrome, and related genetic aortic and vascular conditions. It is designed to increase opportunities for social interaction with others who have a similar diagnosis.
The Kids Club will run for approximately 60 minutes and will be held from 7:00-8:00 pm ET on the third Thursday of each month, beginning February 18, 2021. It will include fun, age-appropriate games and activities, such as Bingo, Would You Rather, Scavenger Hunt, and 5 Second Rule, and will be led by our social worker, Andrea Friedman, MSW. The group is not designed to offer therapy, counseling or advice, but rather an opportunity for participants to have fun and get connected with others in the same age group.
Participants must be between the ages of 9-12 and have a diagnosis of Marfan syndrome, VEDS, Loeys-Dietz syndrome, or a related genetic aortic and vascular condition. Parental or guardian consent must be provided.
All participants must have access to a computer or another device with a camera, as the group will be held on Zoom. It is expected that children join on camera and participate for the entire hour.
How to Register
To register, please provide the information required. An electronic Parental/Guardian Consent Form must be completed for each participant.