Save the Date! Virtual Annual Conference is July 8-11, 2021

Get ready to reboot your connections with the Marfan, Loeys-Dietz, VEDS, Stickler, and our related genetic aortic and vascular conditions community at our 2021 Virtual Annual Conference, scheduled for July 8-11, 2021. 

From anywhere in the world, you will hear the latest updates on genetic aortic and vascular conditions, have access to medical presentations from the world’s leading experts on demand, and benefit from numerous opportunities to get plugged into the community. And, there will be no registration fee to participate.

“We are excited about the value we can offer our community through innovative online programming,” said Cory Eaves, Chair of the Foundation’s Board of Directors. “While we are disappointed that we cannot meet in person again this summer, the Virtual Annual Conference, which we are offering free of charge, will give everyone an opportunity to reconnect with the Marfan, LDS, VEDS, and related genetic aortic and vascular conditions.” 

The Virtual Annual Conference program, including presentations and online meet-ups, will be driven by the needs of the community, with the Foundation’s Volunteer Leadership Committee working hand-in-hand with the staff team to create a meaningful experience for all.

“Even during this difficult time, the Foundation has continued to provide us with comprehensive medical information from the leading experts on our conditions,” said Heather Bergstrom, of Minnesota, a member of the Board of Directors and chair of the Foundation’s Volunteer Leadership Committee. “While the conference will, as always, feature speakers who will share updated medical information, the focus will be on what most of us are missing during the pandemic: connections with the community. Having a warm and welcoming community is one of the pillars of the Foundation, and we are committed to creating a four-day online event that offers fun and engaging opportunities to meet and socialize with people with the same condition, in the same age range, with the same concerns.” 

The Foundation’s first virtual event, the International E3 Summit, held last summer, was the largest event in our history. We hope you will join us for the 2021 Virtual Annual Conference, which promises to be another ground-breaking virtual event for our community.

More details about the 2021 Virtual Annual Conference, including how to register, will be available this Spring. To ensure you are among the first to be notified, please visit and sign up for our email alerts or text VEDS to 52886.