Author: Ryan Rodarmer

We are excited to introduce two new resources aimed at empowering the VEDS community and educating healthcare providers. These tools can significantly improve the quality of care you receive. 1) Hospital Sign for VEDS Inpatients Download A crucial tool for our VEDS community members during hospital stays. This sign will alert healthcare workers about the VEDS diagnosis and provide…

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Authored by multiple members of our professional advisory board, this study investigates how twisted or curved vertebral arteries (the arteries supplying blood to the brain), termed “vertebral tortuosity,” may relate to blood vessel, hollow organ, and lung issues in people with Vascular Ehlers-Danlos syndrome (VEDS). Summary:   The research found that increased twisting of these arteries is linked to a higher rate…

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